ENRICHEnabling Research in Care Homes
Resources for Research community
Written by care home staff and researchers, our case studies provide real life examples of challenges and lessons learned by those involved in research. They help describe how others have approached particular challenges, such as acquiring consent, involving care home managers and gaining staff buy-in.
The studies also illustrate the short-term and long-term benefits to care homes and help staff to understand what is involved.
We have also collated a set of Useful Links to organisations, resources and other information.
- Dementia Research – a care home perspective
- Dementia Research THE PROVIDE STUDY
- Doing ‘with’ rather than doing ‘to’ – working in partnership with care home staff
- Ethical concerns raised by research in care homes – getting it right
- Gaining staff buy in
- Getting staff involved in research
- How ENRICH helped boost recruitment
- Laying the foundations – what helps research in care homes to work well?
- Overcoming the challenges of recruiting care homes to research
- Successfully working with care homes
- Successfully working with care homes (Wales)
- Taking part in care home research – how to improve the experience for everyone involved
- Talk to the people who know – consulting widely before starting care home research
- Testing Methods in the Real World
- Utilising the Network to boost recruitment
- Working in the field – lessons for care home researchers
provides information and advice, products, training and research for older people.
- Aging and Mental Health – Culture, consent, costs and care homes: Enabling older people with dementia to participate in research
Alzheimer’s Disease International (ADI)
The ADI Annual Reports are a rich research resource.
Alzheimer’s Research UK
Backed by our passionate scientists and supporters, we’re challenging the way people think about dementia, uniting the big thinkers in the field and funding the innovative science that will deliver a cure.
Alzheimer’s Society – Selecting a care home
a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland
Association of Directors Adult Social Services (ADASS)
home of the Association of Directors of Adult Social Services, and the voice of adult social care.
is a comprehensive care home search engine and a source of vital information on care for older people and people with learning disabilities and lists all care homes across England.
British Geriatrics Society
is a professional association of doctors practising geriatric medicine, old age psychiatrists, general practitioners, nurses, therapists, scientists and others with a particular interest in the medical care of older people and in promoting better health in old age.
- British Geriatrics Society: Quest for Quality
is the largest representative body for community care in England.
Care Home UK
the website contains a detailed database of UK Care Homes and Providers, as well as Suppliers, Authorities and Associations to the UK Care Industry.
Care Quality Commission
CQC regulates health and adult social care services in England, whether they are provided by the NHS, local authorities, private companies or voluntary organisations.
- Care Standards Act 2000
- Centre for Policy on Ageing – Increasing the voice, choice and control of older people
- Challenges to research in nursing homes – Sue Hall et al
independent high quality evidence for health care decision making.
- Cochrane Report **
- Delivering PPI in Care Home Research
- Dementia and well-being: possibilities and challenges
Department of Health (Dementia)
living well with dementia - a National Dementia Strategy' was published in February 2009. It set out a vision for transforming dementia services with the aim of achieving better awareness of dementia, early diagnosis and high quality treatment at whatever stage of the illness and in whatever setting.
End-of-life care for community dwelling older people with dementia
an integrated review
- Essential Standards of Quality and Safety Care Quality Commission 26 2010
- Evidence based interventions in Dementia
- Gold Standards Framework for Care Homes
- Guide to recognising elder abuse
Health Research Authority
provides a unified national system for the governance of health research.
- Housing & Dementia Research Consortium
Housing and Care for Older People Research Network
the network bring together researchers interested in the role of housing in social care.
- Improving care in residential homes: The Joseph Rowntree Foundation
- Marie Curie – Patient Choice
- MCOP Study
Medical Research Council Clinical Trials Unit
The MRC Clinical Trials Unit (CTU) is a centre of excellence for clinical trials, meta-analyses and epidemiological studies.
Medicines and Healthcare products Regulatory Agency
(MHRA) is the government agency which is responsible for ensuring that medicines and medical devices work, and are acceptably safe. The MHRA is an executive agency of the Department of Health.
- Mental Capacity Act 2005 **
My home life
Is a new initiative aimed at improving the quality of life of those who are living, dying, visiting and working in care homes for older people. It provides hub of information and shares best practice with those working in this setting.
- My Home Life – Quality of Care
National Care Home Research and Development Forum
provides a platform for researchers and practitioners to network, share information and ideas arising from their work.
- National Institute for Clinical Excellence/SCIE – Dementia Guidelines
National Institute for Health Research
creates a health research system in which the NHS supports outstanding individuals, working in world class facilities, conducting leading edge research focused on the needs of patients and the public.
National Research Ethics Service (NRES)
protect the rights, safety, dignity and well-being of research participants; and facilitates and promotes ethical research that is of potential benefit to participants, science and society.
- NHS Choices – information on care homes
NHS Research and Development Forum
a network for those involved in managing and supporting R&D in health and social care. Their aim is to improve the environment for research in health and social care by facilitating and encouraging sharing of best practice.
- NHS support for non-commercial externally funded R&D
NIHR Clinical Research Network
as part of the National Institute for Health Research, the Clinical Research Network helps to provide the infrastructure that allows high-quality clinical research to take place in the NHS, so that patients can benefit from new and better treatments, and they can learn how to improve NHS healthcare for the future.
NIHR Dissemination Centre Themed Review – Advancing Care, Research in Care Homes
Advancing Care provides an overview of recent NIHR research on improving the health and care of care home residents. It highlights current research taking place now and explores new approaches being developed in this important area.
NIHR Research Design Service
supports researchers to develop and design high quality research proposals for submission to NIHR and other national, peer-reviewed funding competitions for applied health or social care research.
NIHR School for Social Care Research
develops the evidence base for adult social care practice by commissioning and conducting world-class research.
- NIHR School for Social Care Research (SSCR) Methods Reviews
NRES Integrated Research Application system
a website that captures the information needed for the relevant approvals from research review bodies.
- Older People’s Health and Wellbeing
Personal Social Services Research Unit (PSSRU)
carries out independent research aimed at improving the equity and efficiency of social and health care.
- Research governance framework for health and social care
- Scottish Dementia Clinical Research Network
- Senses Framework
- Sheltered Care Environment Scale Moos and Lemke
- Social Care Institute for Excellence – Living in care, a positive outcome
Social Care Institute for Excellence (SCIE)
gathers and analyses knowledge about what works and translates that knowledge into practical resources, learning materials and services. Their work helps to improve the knowledge and skills of those working in care services.
Social Care Research Ethics Committee
The Social Care REC reviews adult social care research study proposals, intergenerational studies involving adults and children or families, use of social care databases and some proposals for social science studies situated in the NHS
- Social care workforce profile: Age, gender and ethnicity, in Social Care Workforce
Social Services Research Group
an independent network of individuals who provide a range of research information, planning and evaluation in social care and health services.
Triangle of Care – Guidance for involving carers and family
Produced by the Carers Trust and the National Mental Health Development Unit this useful guidance helps to gain the strategic involvement of carers and families in the care planning and treatment of people dementia and other cognitive impairment.
UKCRC Regulatory & Governance Advice Service
provides advice on the changes to the regulatory and governance environment across the UK clinical research community.
- Understanding Care Homes: A Research and Development Perspective, Froggatt, K. Davies, S and Meyer ,J. 2009 (eds)
- Understanding the Costs of End of Life Care in Different Settings, Marie Curie Cancer Care **