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“Back for 2022 Adam Smith is hosting a  12+ hour non-stop livestream discussion with over 60 researchers and special guests, working across all areas of discovery to beat Alzheimer’s disease and all forms of dementia. Raising money for four great research charities and providing insights into the latest research taking place across the UK and Worldwide.

Aimed at anyone with an interest in dementia (including healthcare professionals, clinicians, researchers, people living with dementia and their families). Adam will be interviewing researchers in small groups throughout the day, covering everything from prevention, diagnosis, the latest treatments, improvements in care and everything in between – a link to the stream, a full list of guests and a schedule can be found at www.chatathon.uk.

The event will be streamed free of charge on YouTube, allowing you to drop-in and out, or stay the whole day.

The charities that will benefit from any donations / sponsorship are Alzheimer’s Research UK, Alzheimer’s Society, Race Against Dementia & The Lewy Body Society – every £1 counts to fund more vital research. You can donate at www.chatathon.uk

Hear Adam discuss the event here – https://youtu.be/mlLpRGfAyU0

If you have any questions, contact adam.smith@ucl.ac.uk

“Senior Research Fellowship

Senior Research Fellowships are designed to retain excellent clinical and non-clinical researchers who have a track record of nationally competitive research, and clear plans to manage their own independent research group and become internationally recognised within the field of biomedical dementia research.

Grant amount: Up to £420,000

Grant deadline: 25 January 2023

The Major project grant scheme provides funds for intermediate to large scale research projects.

Grant deadline: 25 January 2023

Early Career Researcher Bridge Fund

This scheme aims to enable the retention of early career researchers in dementia research or to address particular pinch points in their career path.

Grant amount: Up to £30,000

Grant deadline:  18 November 2022″

For more details click here

With millions of us living longer with ever-increasing care needs, providing effective care for older people living in nursing homes is now more important than ever.

An estimated 361,000 people live in UK care homes, with this figure expected to rise in line with an ageing population.

Research is a key driver in the continuous improvement of health and social care services, including providing dignified end-of-life care for care home residents, many of whom are living with dementia. But how can we champion and facilitate research in what can be a challenging care environment?”

To learn more about how the NIHR intend to engage with care homes to carry out research click here for the full blog.

“Residents’ quality of life is better in care homes rated as good or outstanding by the Care Quality Commission (CQC). Research found that their quality of life is better in fully-staffed homes, and where staff have better pay and training.

Care providers are obliged to nurture residents’ quality of life, but there is no standard way of measuring quality of life in care homes. The CQC rates whether homes are safe, effective, caring, responsive and well-led. But before this study, it was not known whether CQC ratings were a good reflection of residents’ quality of life. It was also not known whether staff numbers, pay and training were linked to CQC ratings. This is important because care workers often have poor pay and little training beyond basic induction training. Staff shortages, which increase time pressures, are common.

Staff need the right tools to gather information about residents’ health and quality of life. Many care home residents have dementia and may find it difficult to tell staff how they are feeling. In the first part of this study, the research team worked with staff, residents and families to develop tools to help care home staff identify pain, anxiety and low mood in residents. These tools are suitable for residents with dementia and those with communication difficulties; staff do not need clinical training to use them.

The study also found that better CQC ratings were linked with higher quality of life among the residents who need most help. Caring and well-led services made a measurable difference, especially for residents who rely on staff to meet their basic needs. Better pay and training for staff were linked to higher CQC ratings. A 10% wage increase was linked to a 7% higher chance of a care home being rated as good or outstanding.

Together, the findings show the link between working conditions, care quality and residents’ quality of life. The researchers say that policies to improve working conditions for staff are essential to improve outcomes for people living in care homes.”

If you would like to read more about this study click here.

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‘Call for Research Proposals – Dementia

As part of the NIHR Three Schools’ Dementia Research Programme, we are inviting proposals for research projects to address priorities for improving the lives of people living with or at risk of dementia, family and other carers.

We are seeking innovative, original, high-quality proposals which represent good value for money. Although this is an open call, we would particularly welcome proposals:

  • focusing on post-diagnostic support and/or end-of-life care
  • that explore equality, diversity and inclusion issues in dementia prevention, care and support, including in relation to the ‘oldest old’ and people with multiple long-term conditions
  • where research will be carried out in localities that are not so well engaged in dementia studies.

Through this call, we are also seeking to encourage new and developing dementia researchers to lead studies, as well as proposals led by practice researchers, professionals (including managers and commissioners), and people living with dementia and/or carers.

Funding of up to £200,000 is available for projects between January 2023 and March 2024.

This is a one-stage call for proposals. Proposals must be submitted by 16.30 on Wednesday 7 September 2022.’

For more information click on this website: 

How will dementia care develop and transform in the future? – be part of the conversation at Care Roadshows London as our brilliant panellists dive deep into the crucial challenges of dementia care 💚

Join the discussion with:

Jackie Pool, Dementia Care Champion at Quality Compliance Systems

Dr Kellyn Lee 💚, CEO and Founder of WISER Health and Social Care and Visiting Researcher at the University of Southampton

Dr Rosie Mead, CEO of Musica Music and Wellbeing CIC

Nula Suchet, Author of – The Longest Farewell: James, Dementia and Me

Rishi Jawaheer, Director of The Jawa Group, Namaste Care International & CareVision CMS.

 

Date: Tuesday 18th October 2022

Venue: Epsom Downs Racecourse

To register for your free ticket click here

“NIHR, working in collaboration with Alzheimer’s Society, has announced new funding to strengthen capacity and capability in dementia health and care research across the NIHR Applied Research Collaborations (ARCs).

In addition, the three NIHR research schools – in primary care, public health and social care – have also funded a number of dementia career development awards and projects to encourage new and developing dementia researchers to lead studies.

NIHR is committed to building capacity and capability in preventative, public health and social care research, with increasing funding for dementia research a key plank of this ambition.

Professor Lucy Chappell, Chief Executive of the NIHR, said: “We want to improve the lives of people with dementia, and those caring for them, through innovative research that tackles a range of challenges around this disease.

“This new funding taps into the up-and-coming talent in the NIHR ecosystem, supporting fledgling dementia researchers from a range of disciplines to become the chief investigators of the future and building a solid foundation for the next decades of dementia research.”

Developing post-doctoral dementia researchers

All 15 NIHR ARCs have received £7.5 million of funding to support up to three career development awards for early career researchers in dementia, to build strength in dementia-related applied health and care research.

The funding, provided in partnership with the Alzheimer’s Society, will support a cohort of post-doctoral health and care researchers toward independence, developing their skills to establish their own research projects, programmes and ultimately groups.

Dr Richard Oakley, Associate Director of Research at Alzheimer’s Society, said: “Dementia can be devastating for many, and we estimate that 1 million people in the UK will have the condition by 2025. Research provides hope by helping us better understand the causes of dementia as well as developing effective treatments and improved diagnostic techniques, so people with the condition can access the support they need to live well.

“Early career researchers represent the lifeblood of dementia research, bringing fresh ideas and perspectives. We’re investing in the careers of the future leaders in dementia research in partnership with the NIHR on this training programme so we can unlock the dementia breakthroughs of the future.”

The funding will support researchers from a wide range of disciplines, such as healthcare, primary care, public health, social care, neuroscience, social sciences, methodology and the creative arts.

For example, NIHR ARC Kent, Surrey and Sussex will be offering post-doctoral research posts to investigate how to support wellbeing for people with dementia living alone or in hard-to-reach areas and to integrate healthcare, social care and voluntary sector services, to provide a seamless ‘patient journey’ for dementia patients.

The posts NIHR ARC South London will focus on telehealth for family carers of people with dementia and on supporting care homes to better meet the spiritual needs of residents.

More information about the posts will be available in the coming weeks on the website of NIHR ARC Wessex.

Building multidisciplinary dementia researchers

A total of £4.3 million of funding is being injected into supporting researchers in dementia via the NIHR Schools for Primary Care Research (SPCR), Public Health Research (SPHR) and Social Care Research (SSCR). The three schools have joined forces to collaboratively commission and conduct high quality cross-cutting and community-orientated dementia research to address key gaps in the evidence base.

The NIHR Three Schools’ Dementia Research Programme, led by SSCR, has announced £2.8 million of funding for 16 career development awards and nine research projects through its first two funding calls.

One project is developing a sustainable platform to understand the primary care, public health and social care needs for dementia, with a focus on underserved populations. Another is tailoring carers assessments to the needs of carers of those with dementia.

The career development awards are likewise supporting research on a range of topics in dementia, such as an initiative co-producing self-management resources with people with dementia.

The research projects and career development awards are supporting a range of early career researchers, to build capacity in dementia research.

The schools have now launched a third £1.5 million call for research projects to improve the lives of people living with or at risk of dementia, and their family and other carers.

Professor Martin Knapp, Director of NIHR SSCR, said: “Every one of these research projects and career development awards spans at least two of the NIHR research school ‘territories’ – social care, primary care and public health – and address NIHR priorities in the dementia area. These are areas where research could have real impact on the health and wellbeing of people living with, or at risk of dementia and of carers.”

Continence, dementia, and care that preserves dignity

 “Dementia is a growing, global challenge. As populations age, it has become one of the most important issues facing health and care systems around the world. People living with dementia often have problems going to the toilet (continence problems) which can have a profound impact on their lives and on their carers’. There is a misconception that nothing can be done if a person living with dementia experiences episodes of incontinence of urine or faeces or both. In fact, continence can be promoted through activities and care practices, including a balanced diet, exercise, and a clear routine. Encouragement and help to use the toilet may involve ‘signposting’ the toilet and mobility aids. A growing range of products, including assistive technology, can help some people at some times. Even so, the progressive nature of dementia means that there will come a point where containment might be the best approach. In which case, carers and practitioners need support and advice to provide this intimate care in the best way possible.”

“This themed review, featuring NIHR-funded research, identifies the impact of continence problems on people living with dementia and their carers, as well as ways to improve continence care at home, in care homes and in hospitals.”

For more information on this topic you either read the report by clicking here or listen to our podcast by clicking here

This month, Foothold (IET Benevolent fund) are delighted to be joined by BPS chartered psychologist and dementia care researcher  Dr Kellyn Lee for 2 special webinars.

If you’re currently caring for someone with dementia, these expert webinars will help you cope with the extraordinary challenges dementia can bring, whilst improving the wellbeing of the people you care for.

May 19th 12:00 – 13:00

PART 1: Understanding the importance of everyday objects in dementia care – Material Citizenship

May 20th 12:00 – 13:00

PART 2: Supporting the wellbeing of families of people with dementia through the We Care – Dementia Care programme

Find out more in Dr Kellyn’s brand-new blog 

To book your place on one or both of these free webinars click here

 

The Journal of Dementia Care and Vibrant Communities are delighted to announce a series of online meetings to imagine and co-produce the future of our dementia care community

It is an Open Space event convened by the Journal for Dementia Care/Dementia Publishing and facilitated by Ladder to the Moon/Vibrant Communities.

“A community for progressive dementia care practice is needed in the UK, and we want you to be part of bringing it to life. We would love you to bring your skills, experience and insights to this event or another of the online meetings we plan to hold leading up to the relaunched, live UK Dementia Congress in November. We need voices from all care settings and sectors, including people living with dementia and all carers.”

This is an online event –  Thursday 28 April, 2-4pm

For details and to book a free place click here