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‘Call for Research Proposals – Dementia

As part of the NIHR Three Schools’ Dementia Research Programme, we are inviting proposals for research projects to address priorities for improving the lives of people living with or at risk of dementia, family and other carers.

We are seeking innovative, original, high-quality proposals which represent good value for money. Although this is an open call, we would particularly welcome proposals:

  • focusing on post-diagnostic support and/or end-of-life care
  • that explore equality, diversity and inclusion issues in dementia prevention, care and support, including in relation to the ‘oldest old’ and people with multiple long-term conditions
  • where research will be carried out in localities that are not so well engaged in dementia studies.

Through this call, we are also seeking to encourage new and developing dementia researchers to lead studies, as well as proposals led by practice researchers, professionals (including managers and commissioners), and people living with dementia and/or carers.

Funding of up to £200,000 is available for projects between January 2023 and March 2024.

This is a one-stage call for proposals. Proposals must be submitted by 16.30 on Wednesday 7 September 2022.’

For more information click on this website: 

How will dementia care develop and transform in the future? – be part of the conversation at Care Roadshows London as our brilliant panellists dive deep into the crucial challenges of dementia care 💚

Join the discussion with:

Jackie Pool, Dementia Care Champion at Quality Compliance Systems

Dr Kellyn Lee 💚, CEO and Founder of WISER Health and Social Care and Visiting Researcher at the University of Southampton

Dr Rosie Mead, CEO of Musica Music and Wellbeing CIC

Nula Suchet, Author of – The Longest Farewell: James, Dementia and Me

Rishi Jawaheer, Director of The Jawa Group, Namaste Care International & CareVision CMS.

 

Date: Tuesday 18th October 2022

Venue: Epsom Downs Racecourse

To register for your free ticket click here

“NIHR, working in collaboration with Alzheimer’s Society, has announced new funding to strengthen capacity and capability in dementia health and care research across the NIHR Applied Research Collaborations (ARCs).

In addition, the three NIHR research schools – in primary care, public health and social care – have also funded a number of dementia career development awards and projects to encourage new and developing dementia researchers to lead studies.

NIHR is committed to building capacity and capability in preventative, public health and social care research, with increasing funding for dementia research a key plank of this ambition.

Professor Lucy Chappell, Chief Executive of the NIHR, said: “We want to improve the lives of people with dementia, and those caring for them, through innovative research that tackles a range of challenges around this disease.

“This new funding taps into the up-and-coming talent in the NIHR ecosystem, supporting fledgling dementia researchers from a range of disciplines to become the chief investigators of the future and building a solid foundation for the next decades of dementia research.”

Developing post-doctoral dementia researchers

All 15 NIHR ARCs have received £7.5 million of funding to support up to three career development awards for early career researchers in dementia, to build strength in dementia-related applied health and care research.

The funding, provided in partnership with the Alzheimer’s Society, will support a cohort of post-doctoral health and care researchers toward independence, developing their skills to establish their own research projects, programmes and ultimately groups.

Dr Richard Oakley, Associate Director of Research at Alzheimer’s Society, said: “Dementia can be devastating for many, and we estimate that 1 million people in the UK will have the condition by 2025. Research provides hope by helping us better understand the causes of dementia as well as developing effective treatments and improved diagnostic techniques, so people with the condition can access the support they need to live well.

“Early career researchers represent the lifeblood of dementia research, bringing fresh ideas and perspectives. We’re investing in the careers of the future leaders in dementia research in partnership with the NIHR on this training programme so we can unlock the dementia breakthroughs of the future.”

The funding will support researchers from a wide range of disciplines, such as healthcare, primary care, public health, social care, neuroscience, social sciences, methodology and the creative arts.

For example, NIHR ARC Kent, Surrey and Sussex will be offering post-doctoral research posts to investigate how to support wellbeing for people with dementia living alone or in hard-to-reach areas and to integrate healthcare, social care and voluntary sector services, to provide a seamless ‘patient journey’ for dementia patients.

The posts NIHR ARC South London will focus on telehealth for family carers of people with dementia and on supporting care homes to better meet the spiritual needs of residents.

More information about the posts will be available in the coming weeks on the website of NIHR ARC Wessex.

Building multidisciplinary dementia researchers

A total of £4.3 million of funding is being injected into supporting researchers in dementia via the NIHR Schools for Primary Care Research (SPCR), Public Health Research (SPHR) and Social Care Research (SSCR). The three schools have joined forces to collaboratively commission and conduct high quality cross-cutting and community-orientated dementia research to address key gaps in the evidence base.

The NIHR Three Schools’ Dementia Research Programme, led by SSCR, has announced £2.8 million of funding for 16 career development awards and nine research projects through its first two funding calls.

One project is developing a sustainable platform to understand the primary care, public health and social care needs for dementia, with a focus on underserved populations. Another is tailoring carers assessments to the needs of carers of those with dementia.

The career development awards are likewise supporting research on a range of topics in dementia, such as an initiative co-producing self-management resources with people with dementia.

The research projects and career development awards are supporting a range of early career researchers, to build capacity in dementia research.

The schools have now launched a third £1.5 million call for research projects to improve the lives of people living with or at risk of dementia, and their family and other carers.

Professor Martin Knapp, Director of NIHR SSCR, said: “Every one of these research projects and career development awards spans at least two of the NIHR research school ‘territories’ – social care, primary care and public health – and address NIHR priorities in the dementia area. These are areas where research could have real impact on the health and wellbeing of people living with, or at risk of dementia and of carers.”

Continence, dementia, and care that preserves dignity

 “Dementia is a growing, global challenge. As populations age, it has become one of the most important issues facing health and care systems around the world. People living with dementia often have problems going to the toilet (continence problems) which can have a profound impact on their lives and on their carers’. There is a misconception that nothing can be done if a person living with dementia experiences episodes of incontinence of urine or faeces or both. In fact, continence can be promoted through activities and care practices, including a balanced diet, exercise, and a clear routine. Encouragement and help to use the toilet may involve ‘signposting’ the toilet and mobility aids. A growing range of products, including assistive technology, can help some people at some times. Even so, the progressive nature of dementia means that there will come a point where containment might be the best approach. In which case, carers and practitioners need support and advice to provide this intimate care in the best way possible.”

“This themed review, featuring NIHR-funded research, identifies the impact of continence problems on people living with dementia and their carers, as well as ways to improve continence care at home, in care homes and in hospitals.”

For more information on this topic you either read the report by clicking here or listen to our podcast by clicking here

This month, Foothold (IET Benevolent fund) are delighted to be joined by BPS chartered psychologist and dementia care researcher  Dr Kellyn Lee for 2 special webinars.

If you’re currently caring for someone with dementia, these expert webinars will help you cope with the extraordinary challenges dementia can bring, whilst improving the wellbeing of the people you care for.

May 19th 12:00 – 13:00

PART 1: Understanding the importance of everyday objects in dementia care – Material Citizenship

May 20th 12:00 – 13:00

PART 2: Supporting the wellbeing of families of people with dementia through the We Care – Dementia Care programme

Find out more in Dr Kellyn’s brand-new blog 

To book your place on one or both of these free webinars click here

 

The Journal of Dementia Care and Vibrant Communities are delighted to announce a series of online meetings to imagine and co-produce the future of our dementia care community

It is an Open Space event convened by the Journal for Dementia Care/Dementia Publishing and facilitated by Ladder to the Moon/Vibrant Communities.

“A community for progressive dementia care practice is needed in the UK, and we want you to be part of bringing it to life. We would love you to bring your skills, experience and insights to this event or another of the online meetings we plan to hold leading up to the relaunched, live UK Dementia Congress in November. We need voices from all care settings and sectors, including people living with dementia and all carers.”

This is an online event –  Thursday 28 April, 2-4pm

For details and to book a free place click here

“A booklet has been created for carers who assist a person with dementia with their personal care. This booklet was developed as part of the Alzheimer’s Society funded Pro-CARE study, which was undertaken at the University of East Anglia. The booklet is available on the link below, please do share with any family carers, care-home staff or dementia support organisations you feel may benefit from the resource.”

Click here for access to the booklet 

“Margaret Butterworth Care Home Forum is a forum for discussion and learning focused on dementia care in communal settings such as nursing homes, care homes and extra care housing. There will be 3 webinars over the course of 2022. The first webinar on 23 March 2022, from 2.00-4.00 will focus on the theme ‘Visiting in care homes during Covid-19’.

Two speakers will discuss this topic:

Josie Dixon, Assistant Professorial Research Fellow, Care Policy and Evaluation Centre, London School of Economics and Political Science, will discuss the study Visit-id: a study of care home visiting arrangements during Covid-19

Dr Kathleen Lane, PI of UCAIRE study, University of East Anglia, will talk about the study titled “We can’t visit and see what’s going on for her… it’s like having paper-bags over our heads”: experiences of infection-control measures on family and friends of care-home residents during Covid-19

We will have plenty of time for questions and discussions. Once you have registered on Eventbrite, you will receive the Zoom-link a few days before the webinar.”

 

To register click here

 

Call summary

  • This RfSC call is an important part of the Department of Health and Social Care and NIHR’s ongoing interest in strengthening dementia research in less well-supported areas, better understanding the needs of underserved populations and social care needs, as well as identifying best practice in relation to critical points, including diagnosis, hospitalisation, residential care and end-of-life care.
  • The Research for Social Care (RfSC) call, is inviting proposals from eligible research teams to improve the evidence base around social care and dementia
  • This call offers researchers considerable flexibility to focus on any subject area or topic providing that it falls within RfSC’s dementia remit.
  • This call is open to researchers at all career stages, and standard RfSC eligibility rules and criteria will apply. In particular we are looking for researchers from a wide selection of backgrounds, and early career researchers are especially welcomed.
  • The call is for proposals up to £350,000 for a period of up to 36 months with projects needing to commence between 1 September 2022 and 1 March 2023. 
  • Applications are expected to have strong involvement and collaboration with organisations that are responsible for delivering social care and related social care services, for example local authorities and third sector, where appropriate. Applicants may wish to consult the NIHR guidance on co-producing research.

Closes: 13:00 on 19 October 2021

For further information visit website

 A new guidance document has been published on the South East Clinical Network website on the topic of Dementia and OPMH: Guidance for Primary Care Networks and Care Homes. This document aims to equip members of staff working in care homes and primary care with understanding of dementia and mental health conditions due to the prevalence of both disorders in care home populations.”

To access the document click here