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Please join us virtually or in person at our annual Care Home Research Forum at Hammerson House, 50A The Bishops Avenue, London N2 0BE on Wednesday, 29th November 2023 (9.30am to 4pm).

To find out more and to book your place:

The existing service has enjoyed considerable success, with approximately 60,000 people currently registered, over 10,000 new volunteers in the last year. Volunteers have been involved in a range of studies which have helped improve quality of life and led to some promising pharmaceutical breakthroughs.

Over recent weeks we have discussed the service with people living with dementia and their families, as well as charities, government organisations, researchers and other stakeholders.

This feedback is helping us to understand the current challenges facing users and researchers and how to ensure the service works for them. We are working on a blueprint for an improved dementia research service which will be tested and refined over the coming months.

We are continuing our commitment to involving people with dementia in the design process and to ensure research remains as accessible as possible to people living with the condition. Ultimately, the work should enable more high-quality dementia research to take place through the service and enable more people to actively take part.

We are grateful for the continued support Join Dementia Research receives from the care home community, residents, and their families and friends.

Join Dementia Research stories:

Please encourage your residents and their families and friends to sign up to Join Dementia Research.

If you missed our CRED talk this week we have recorded it, therefore you do not need to miss a thing!

We heard from:

Chair: Professor Deborah Sturdy, England’s Chief Nurse for Adult Social Care

Adeela Usman, Doctoral Fellow at the University of Nottingham: QUINCE study: How quality of life is described and can be delivered in care homes

Dr Kellyn Lee, WISER Health and Social Care, and Dr Jane Frankland, University of Southampton: Material Citizenship training: how thinking about everyday objects differently can improve quality of life in care homes

Bryony Beresford, Professor of Health and Care Services Research, University of York: Behind the scenes: organisational features and practices which support and nurture relationship-centred homecare


Please see the recording of the webinar here.

We are now welcoming proposals for #CRED talks on other topics in the months to come. If you are a research team or research-practice partnership with social care research to share, please contact to find out more.

“Free hybrid (in person and online) symposium Experiences and Innovations in Long-Term Care: Hybrid Research Seminar

Wednesday, 12th July.  13:00-15:00 (BST)

The University of Manchester is hosting an afternoon of presentations and discussion about the latest research in long-term care for older adults.


  •  Dr Charlene Chu (Lawrence S. Bloomberg Faculty of Nursing, University of Toronto): The experiences of essential family caregivers of residents in long-term care during COVID-19
  •  Norina Gasteiger (Division of Nursing, Midwifery and Social Work, University of Manchester): Learning by doing: A realist mixed-methods study exploring the feasibility, usability, acceptability and efficacy of virtual reality and augmented reality hand hygiene training for care home workers
  • Dr Maria Panagioti (Division of Population Health, Health Services Research and Primary Care, University of Manchester): Making transitions between care homes and hospitals safer

The event is free to attend, and will run in hybrid format (in-person and online).”

To register please click here

For further details please contact



“Free online seminar: Developing a care partner policy: case studies from the NHS and social care

Thursday, 13 July. 13:00 – 14:30 (BST)

For many older adults who draw on health or social care, support from a loved one is essential to their health and wellbeing. The person who provides this support is often referred to a ‘care partner’ to denote how integral they are to the care of their friend or family member.

Researchers at King’s College London are hosting an online seminar series to explore the role of care partners in health and social care settings. Join us on 13 July to hear from NHS England about the development of their new care partner policy which will be released shortly for stakeholder engagement. We will also learn about how one group of care homes has actively worked alongside families to support the residents in their care.”

You can register by clicking here

If you have any questions about the event, please contact Jo Brown (


“Engaging Dementia are excited to announce their 15th International Dementia Conference will take place at the earlier date of 25th and 26th of May this year, and will be held online via Zoom.

It will feature over 20 speakers across two days, with a particular focus on topics of direct interest to those living with dementia.

Day One: Looking at dementia inclusive community services, resources for family carers, and receiving care in your own home.

Day Two: Discussing the services for those in residential care settings, and the latest ideas and innovations to improve long term care services.

General admission and student tickets are available now on their website, starting at just €20.

Additionally, free tickets are available for all persons living with dementia and their family carers with thanks to sponsor Home Instead.

Visit for more information.”



“We are excited to announce that Sharon Kaasalainen (Professor of Nursing at McMaster University in Canada: will be the keynote speaker at our annual general meeting this year. The event will be held online, from 2-3pm, on Monday 12th June, and will be free to attend. Registration details will be sent out later this month. But, in the meantime, please do save the time and date in your diaries!”

Webinar Five: Developing an ASCOT Easy Read for Older Adults.

The Fifth seminar in this series focuses on developing an ASCOT Easy Read for Older Adults.

Date and time:  Mon, 22 May 2023 12:30 – 13:30 BST  – Online

Chair: Professor Ann-Marie Towers, ASCOT programme lead, SSCR Leadership Fellow, Centre for Health Services Studies, University of Kent.


  • James Caiels, PSSRU, University of Kent. The evolution of the ASCOT-ER in the UK.
  • Birgit Trukeschitz, Assma Hajji, Vienna University of Economics and Business. Through your eyes and in your own words: using eye-tracking and cognitive interviews to develop an easy-read version of the German ASCOT.

James’ presentation will provide an overview of how the ASCOT-ER has been developed in the UK. This will include adaptation for people with Autism and learning disabilities, as well as recent work with older people with early dementia and carers.

Birgit Trukeschitz and Assma Hajji will then talk about using eye-tracking and cognitive interviews to develop an easy-read version of the German ASCOT.

The German ASCOT for service users provides tools to collect data on long-term care related quality of life in German-speaking populations. However, data quality hinges on the respondents’ ability to provide accurate answers – and some respondents may struggle with that for various reasons. Because of that, they have developed an easy-read version of the German ASCOT tools for service users based on previous research, easy-read guidelines, and the use of cognitive interviews and eye-tracking technology. In this webinar, they will present findings from the easy-read adaptation process for the German ASCOT self-completion instrument. They will particularly focus on the eye-tracking exercise and cognitive interviews and provide insights on the advantages and challenges of these approaches.

“Greater attention is rightly being paid to the valuable work that social care staff do to support living and dying well in care home and domiciliary care settings. The evidence base is growing about promoting continence and preventing urinary tract infection (UTI) in old age and is a potentially helpful resource for social care staff and managers. This #CRED talk showcases the best of this research in the UK, with a focus on practical take-home messages for people working in social care.

When the need to go to the toilet is complicated by mobility, sensory and cognitive challenges the health and social care needs of the person often intersect. This #CRED talk will consider the value of reframing different interventions as integral to intimate and personal care work and of fitting them alongside other care being delivered. It discusses how opportunities to reflect on practice and learn from each other about how to promote continence and prevent UTI, help to ensure that existing evidence is used more effectively.

This #CRED talk will bring you up to date with the latest evidence and associated learning resources in care home and domiciliary settings, with the aim of supporting you in the work that you do.

We will be hearing from:

Cathy Murphy, Principal Research Fellow, Bladder & Bowel Management Research Group, University of Southampton: Continence support for people living at home with dementia (DemCon)

Leah Fullegar, PhD student at the University of Southampton: Incontinence and care worker empowerment: My journey in dementia care and research

Claire Goodman, Professor of Health Care Research Centre for Research in Public health and Community Care (CRIPACC): Continence care for people living with dementia in care homes an evidence review: what works in social care settings?

Jacqui Prieto (Associate Clinical Professor at University of Southampton) and Jennie Wilson (Professor at University of West London): Preventing urinary tract infection in care home settings – the ‘StOP UTI’ study

Please join us in creating a credible platform for social care research education and debate #CREDTALKS.

Date:  Thursday 4th May 2023 15:00 – 16:00

 Please click here to register for the event.

Once you have registered you will be invited to the webinar, which will take place via Microsoft Teams. Please see the attached flyer for more details.


“National policy makers are a crucial audience for health and care researchers yet many researchers don’t know how to connect with them.

This webinar from Professor Annette Boaz (London School of Hygiene and Tropical Medicine) will explain the important areas to consider when engaging with and sharing research knowledge with policy makers. It will help researchers to understand what they can offer policy makers and what knowledge mobilisation approaches are most useful. It will also discuss potential challenges and practical tips.

This webinar is for anyone in the health and care community wishing to engage with and share research knowledge with policy makers. By attending this webinar you should:

  • Understand what researchers can offer policy makers
  • Learn about the key areas to consider when engaging with and sharing research knowledge with policy makers
  • Recognise the challenges of engaging with policy makers and provide practical tips to help researchers overcome these.

You will also have the opportunity to ask questions at the end of the webinar.

About our speaker

Annette Boaz is Professor of Health and Social Care Policy at London School of Hygiene and Tropical Medicine. She is a fellow of the Academy of Social Sciences and is a member of the WHO European Advisory Committee on Health Research. With Kathryn Oliver, she co-leads Transforming Evidence, an international initiative designed to support the use of research evidence in different policy fields and contexts.

She has more than 25 years of experience in supporting the use of evidence across a range of policy domains. She was part of one of the largest UK investments in the evidence use landscape and was a Founding Editor of the Journal Evidence & Policy. Annette has also undertaken an international leadership role to promote the use of evidence. In 2019, she published a new book ‘What Works Now’.

This event is being run by NIHR in partnership with NIHR ARC West.”

Date & time: 20 April 2023, 1:00-2:00pm BST

Learn more and register here.

“Following the high standard and volume of entries received in 2022, a new category has been added to celebrate the best use of data in health innovation. There are 11 award categories to enter as well as the grand prix – winner of winners – award. Anyone working in integrated care communities – local authorities, care providers and other NHS health and social services will be able to enter. These awards represent a golden opportunity to tell the story of those who have collaborated and developed new initiatives to support better health outcomes for patients.

The 11 award categories to enter this year are as follows:

  • New for 2023: Best Use of Data in Health Innovation
  • Net Zero Innovation of the Year
  • The Diversity in Innovation Award
  • Excellence in Patient and Public Involvement in Transformation and Innovation
  • Innovation Spread Award
  • Best Workforce Innovation
  • Innovation Helping Address Health Inequalities
  • Outstanding Contribution to Population Health Through Innovation
  • Innovative Health System of the Year
  • Outstanding Collaboration with Industry
  • Enabling Safer Systems of Care Through Innovation.
  • The final, 12th, ‘winners of winners’ award– Innovation Champion of the Year – will be selected by the judges from across the other category winners.

The closing date for submissions will be midnight on Friday 19 May 2023.”

For more details click here