ENRICHEnabling Research in Care Homes
Welcome to the ENRICH guest blog
Read the real-life experiences of people involved in care home research.
Anyone with a story or advice they'd like to share is encouraged to make contact using the contact us page.
Read about current news and developments for care homes research in the new posts section.
Sue Fortescue was an Information Technology manager in Brussels for over 20 years before retiring to the UK. Her father had vascular dementia, and her mother had Huntington’s Disease and the dementia associated with it. Both have now passed away. In retirement Sue joined the Alzheimer's Society Research Network and now plays an active role in reviewing research proposals and monitoring research projects.
In this guest blog I discuss the importance of including lay members on project teams and the value that we can add to projects, given the right conditions. I also outline what can be done by all involved to create those conditions.
Zoe Gray is the Associate Director of Involvement, Participation and Engagement at the NIHR Centre for Engagement and Dissemination (CED); and Tina Coldham is a Public Adviser to NIHR CED. They are both champions of NIHR’s mission to effectively engage and involve patients, public, carers, service users and communities in all parts of the research journey.
In this blog Zoe and Tina discuss the publication of an NIHR report highlighting recommendations in social care research. They urge researchers, research commissioners and managers to play a part in improving public involvement in social care research.
Carinna Lumayno complete her nurse training in the Phillippines in 2005. She worked in a hospital setting for 5 years before moving to the UK. Once living in the UK, Carinna worked as a carer for 3 years. She then trained for her UK registration and was awarded her pin in 2014. Carinna has worked at Kineton Manor since 2013. She started as a nurse trainee and was promoted to staff nurse in 2014.
In this guest blog Carinna Lumayno talks about her experience of taking part in care home research. She introduces the research topic, her initial thoughts and feelings around taking part, some of the challenges of being a ‘champion’ of the research and some tips for researchers.
Do probiotics reduce antibiotic administration in care home residents? Findings from the PRINCESS trial
Vicky Shepherd is a Research Fellow at the Centre for Trials Research at Cardiff University. A nurse by background, her research addresses the ethical and practical challenges of involving people with impaired capacity, including care home residents, in research. She is also involved in a number of clinical trials and other studies with care homes, including working with care home staff to establish the priorities for future care home research.
In this blog the PRINCESS trial team give an update about their recent (pre COVID-19) trial in care homes where they explored whether taking a daily probiotic could reduce antibiotic use in care home residents by preventing infections. They also conducted a qualitative evaluation to understand how the trial was implemented to help inform future trials in care homes.
Research Team: Kerry Hood is Professor of Trials and Director of the Centre for Trials Research at Cardiff University. Her methodological interests include complex trials and increasing inclusivity in research, with a particular focus on care homes and people with a learning disability. Vicky Shepherd is a Research Fellow at the Centre for Trials Research at Cardiff University. A nurse by background, her research addresses the ethical and practical challenges of involving people with impaired capacity, including care home residents, in research. She is also involved in a number of clinical trials and other studies with care homes, including working with care home staff to establish the priorities for future care home research. Fiona Wood is a Professor of Medical Sociology in the Division of Population Medicine at Cardiff University. She specialises in research focused on person centred care and co-leads the PRIME Centre Wales work-package on person-centred care. Ishrat Islam is a Research Associate of PRIME Centre Wales at Cardiff University. Her research interests include behavioural health research around physical activity, public attitudes towards death and dying and cancer research strategy.
COVID-19 has had a devastating impact on people living in care homes, with care home residents accounting for a large proportion of COVID related deaths. A number of trials are underway to test interventions to prevent COVID-19, such as medical treatments. However, it is difficult to compare the findings from these trials to know which intervention is better than the others. It is also important to consider the impact on existing infection control measures, including visiting restrictions. This blog gives an overview of a study, being conducted by researchers at Cardiff University with the Universities of Liverpool and Nottingham, to identify an agreed set of outcomes that clinicians, care home staff, care home residents and their families think are important to consider when assessing the success of an intervention.
Megha Majumder is a PhD student in the Palliative and End of Life Care Group at the University of Cambridge. Her research focuses on end-of-life medicines in relation to a deeply vulnerable population in the UK: care home residents. She is as passionate about quality of death as she is quality of life, and cares a great deal about addressing issues in access to care among marginalized patient groups.
In this guest blog, Meg Majumder introduces a new study, Experiences with End-of-Life Medicines in UK Care Homes. This study will address several knowledge gaps in the evidence base for controlled drugs in UK care homes, specifically the processes and perceptions surrounding the prescribing, storage, monitoring, repurposing, administration, disposal of end-of-life anticipatory medicines. Meg is currently recruiting Care Home Managers, Senior Nurses, GPs and other health and social care professionals involved in the prescribing, storing, administration, or disposal of end-of-life controlled drugs, including anticipatory medicines.
This blog is based on the paper: Toms, Green, Orrell and Verity (2020) Building relational research capacity in care homes in the covid-19 era: applying Recognition Theory to the research agenda.
Taking a theory-based relational approach to building research capacity could improve life in care homes. In this blog authors Stephanie Green, Dr Gill Toms, Prof Fiona Verity, Dr Alison Orrell of their recent open access paper explain why.
Identifying approaches, barriers and facilitators to visiting in care homes during the COVID-19 pandemic
The research team are: Prof Claire Surr, Dr Rachael Kelley, Dr Alys Griffiths, (all pictured) Dr Sarah Smith, Prof Anne-Marie Bagnall, Rebecca Platt and Olivia Robinson.
The topic of care home visiting has been the source of much discussion and debate in the news and on social media since the start of the COVID-19 pandemic. Visiting has been restricted and care homes have adopted various practices to support ongoing contact between residents with dementia and their family members. Some of these may be more successful than others and may work better for some residents than others. This blog gives an overview of a study, being conducted by researchers at Leeds Beckett University, which aims to explore these issues in more detail, and how care home staff, managers and owners can take part.
The other keyworkers in care homes: Implications of including cleaning, catering, and housekeeping staff in social care workforce strategies and practices relating to COVID-19 recovery
Olivia Luijnenburg is a Research Associate at the Health and Social Care Workforce Research Unit (HSCWRU) at King’s College London. She is a medical anthropologist and has a special interest in residential care for older people, spirituality and health, qualitative health research, and ethics in care. She is close to finishing her PhD research at the University of Surrey on the ethical implications of spirituality in residential care for older people.
In this guest blog, Olivia Luijnenburg discusses a research project looking at the experiences and views of cleaning, catering, and housekeeping staff in care homes during the COVID-19 pandemic. She is recruiting cleaning, catering, and housekeeping staff working in care homes for video or telephone interviews. Participants will receive a £20 voucher as a thank you. She would also like to talk to care home managers and staff in charge of human resources in care homes. If you are interested or want to learn more, contact Olivia at email@example.com
Fiona is a registered nurse and researcher. She worked with older people in practice settings for many years. Fiona’s research interests are in older person care and long-term skin conditions. Her expertise is in working with older people, co-creation and knowledge mobilisation, that is, working with health and social care staff and residents to move knowledge across communities to catalyse change. Judith is a registered nurse and health psychologist who works with practitioners and patients to get research into practice to support people getting best care. She is an expert in co-creation and group facilitation and her enthusiasm takes others with her on new journeys to improve lives. Megan is a medical student at the University of Leeds and also works as a carer in a residential home.
In this guest blog Fiona Cowdell, Judith Dyson (Birmingham City University) and Megan Heague (University of Leeds) introduce the first phase of a programme of care home research. Our aim is to work with staff and residents to improve skin hygiene practices and skin health for older people living in care settings.