ENRICHEnabling Research in Care Homes
Welcome to the ENRICH guest blog
Read the real-life experiences of people involved in care home research.
Anyone with a story or advice they'd like to share is encouraged to make contact using the contact us page.
Read about current news and developments for care homes research in the new posts section.
Leah Hewer-Richards is a third-year PhD student at the University of Southampton. Her current study focuses on incontinence-related stigma in residential care and her interests include citizenship, care practices and dogs.
My PhD study is exploring the lived experiences of care home staff supporting people with a dementia with continence care in residential care homes in England. The aim of the study is to develop an understanding of how care staff understand their role in relation to continence care, and managing associated stigma. This data is generated by gathering accounts of interactions during continence care via telephone or video call interviews.
Dr Kinda Ibrahim is a Senior Research Fellow in Geriatric Medicine at the University of Southampton and member of the ARC Wessex Ageing and Dementia theme. Kinda has specific interest in understanding how evidence-based findings can be translated into practice focusing on the experiences and preferences of older people.
In this blog the GOOD NIGHT COVID research team give an update about their recent trial in care homes where they explored whether a simple and cheap intervention – which involved rinsing nose and gargling mouth with salty water – could be implemented by care home staff as a way to prevent the transmission of covid-19 from staff to residents.
Dr Nathan Davies is Senior Research Fellow at University College London (UCL) and an Alzheimer’s Society Junior Fellow. His current work involves family carer decision making, hydration and nutrition, and comfort/discomfort on acute hospital wards at the end of life. Dr Nuriye Kupeli is an Alzheimer’s Society Fellow at the Marie Curie Palliative Care Research Department, UCL. Her work focusses on family carers’ experiences of compassion while caring for someone living with dementia and its impact on carer wellbeing.
In this guest blog Nathan and Nuriye discuss the development of a document designed to help carers when making difficult decisions about care and end of life care. It also provides a variety of information including the signs and symptoms of COVID-19 which may be different for older people, and the legal aspects of making decisions. There is also an interactive booklet for carers to write questions they might like to ask health care professionals.
Planning ahead, older people with learning disabilities and a shake-up of ‘tired’ research practices
Sara Ryan, a sociologist, is an Associate Professor in the Nuffield Department of Primary Care Health Sciences.
In this guest blog Sara Ryan will discuss a new research project which will address the longstanding reluctance among older parents to plan for their daughter or son’s move from the family home to independent supported living or larger residential setting as it can lead to an increased risk of crisis placements.
The REACH project is led by Reena Devi, Senior Research Fellow at the School of Healthcare, Faculty of Medicine & Health, University of Leeds @_DrReenaDevi working as a linking pin researcher in the Nurturing Innovation in Care Home Excellence in Leeds (NICHE-Leeds), partnership initiative between the University of Leeds, Leeds Care Association and Leeds City Council which aims to offer sustainable solutions for care homes to address issues associated with quality of care, quality of life and quality of work (https://niche.leeds.ac.uk Tweets @LeedsNiche).
In this guest blog Dr Reena Devi introduces the REACH study. The project title is REcruiting and RetAining nurses, and carers in Care Homes: what works, for which staff, under what circumstances, and at what cost? The REACH Realist Review will start in springtime 2021. The project is funded by the National Institute for Health Research, Health Services and Delivery Research (HS&DR, reference NIHR131016). The views expressed here are those of the authors and not necessarily those of the NIHR, NHS or Department of Health and Social Care.
Vicky Shepherd is a Research Associate at the Centre for Trials Research at Cardiff University. A nurse by background, her research addresses the ethical and practical challenges of involving people with impaired capacity, including care home residents, in research. She is also involved in a number of clinical trials and other studies with care homes, including working with care home staff to establish the priorities for future care home research. Tweets as @VickyLShepherd
In this guest blog, Vicky discusses the importance of supporting care home residents to take part in research, including those with impaired capacity. How staff play an invaluable role in maximising residents ability to provide consent and enabling consultation with family members. Vicky introduces us to a decision support tool for family members acting as consultees.
Dr Clarissa Giebel is a research fellow at the NIHR ARC NWC at the University of Liverpool. Her research focuses on enabling people living with dementia to live well and independently at home for longer, and explores inequalities in accessing dementia care.
In a new study at the University of Liverpool, we are talking to family members of care home residents with dementia, and care home staff, about their experiences of how COVID-19 has affected their ability to interact with relatives and care for residents. We are talking to people over the phone, and participants will receive a £10 shopping voucher as a thank you. If you want to take part, please get in touch with the lead researcher, Dr Clarissa Giebel (Clarissa.firstname.lastname@example.org).
Keeping the spirits up? A study about promoting good practice in relation to alcohol use in care homes for older people
Sarah is the Director of the Substance Misuse and Ageing Research Team (SMART) at the University of Bedfordshire. Her research interests are the use of alcohol, addictive medicines and illegal drugs among older people. She is passionate about involving the public in research. Sarah has two close relatives with dementia and is a regular visitor to care homes.
In this guest blog Dr Sarah Wadd sets out her plan for a new care home study, funded by the National Institute for Health Research School for Social Care Research, which will explore issues around alcohol use in care homes.
Rachel Daly, Professional and Practice Development Facilitator, Dementia UK. Queens Nurse and District Nurse by background with over 20 years’ experience working in and with care homes as a nurse and a family care partner. Tweets as @dementiaventure
In this guest blog Dr Rachel Daly presents six key factors that enable decision-making in care homes for people living with dementia. She discusses the importance of involving people in everyday decisions and recognising a person’s desire and ability to be involved in the decision-making process (regardless of what the decision is).
The National Care Forum – Learning the lessons from COVID-19 to enrich research relationships with care home homes
Liz Jones is the Policy Director and the National Care Forum, she has a strong background in social policy, care and support and health and housing. Julienne is Professor Emeritus of Nursing: Care for Older People at City, University of London. Her expertise in aged care has long been recognised internationally. She is best known for her work in care homes and was one of the co-founders of My Home Life (MHL) in 2006.
The COVID-19 pandemic has brought into sharp relief the need for more social care research, especially within care homes. This research clearly needs to be shaped by the priorities of residents, relatives and care providers.